Epilepsy support association uganda

History

Epilepsy support Association Uganda (ESAU) is a membership organization of people with epilepsy. The association was formed in 1997 at Mbarara University Teaching hospital out of epilepsy clinics that were being run by the psychiatric department.

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All patients who attended the monthly epilepsy meetings were encouraged to join an epilepsy support group. In the support groups, PWE and their parents received healthy information and education about their condition from health workers. They would ask questions and share experiences about their condition. Similar support groups were gradually initiated at Rubindi, Ibanda, Itojo, and Rushere in Mbarara district.

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With the support of Danida, the association is now operational in 20 districts; Adjumani, Moyo, Arua, Apac, Oyam, Kaberamaido, Katakwi, Amuria, Soroti, Kumi, Jinja, Luweero, Nakaseke, Masaka, Mbarara, Bushenyi, Ntungamo, Kabale, Hoima and Mpigi. We have a membership of around 3000 members.

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The Association is a registered NGO with permission to operate in the whole country. ESAU networks with all the organisations in the disability movement in Uganda. These include; DSI, Action on Disability and Development (ADD), Uganda Society for Disabled Children (USDC), National Union of Disabled Persons of Uganda (NUDIPU), Uganda National Association of the Deaf (UNAD), Uganda Parents of Children with learning Difficulties (UPACLED), Uganda National Association of Physical Disability (UNAPD), National Union of Women with Disabilities of Uganda (NUWODU), Mental Health Uganda (MHU), Uganda National Association of the Blind (UNAB) Ministry of Health (MOH), and Ministry of Gender Labour and Social Development (MGLSD).

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ESAU appreciates the working partnership, support, courage and guidance received from these organizations and government departments.

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